Showing posts with label disability. Show all posts
Showing posts with label disability. Show all posts

Thursday, September 1, 2011

confused...

i got the call from my surgeon today. i'm still wondering if it was good news or bad news. the build up for this last week has been hope for an answer. a definite answer as to why i am in this much pain.

good news is that my labrum and cartilage look great. everything is attached, no debris, looking good. the only abnormality, if that is even what you can call it that, is that the capsule is not healed yet. the capsule is removed/pulled away during surgery so that the surgeon can pull the femur out of the socket, and get to the femur and acetabulum for bone removal.



my surgeon doesn't usually do an mri-a at this point post-op so we really don't know what the capsule should look like. we are at a complete loss as to what might be causing me this much pain at this point. this is deflating. all i wanted was a, "this is what is causing the pain".

i am left with a waiting period and praying that things will settle down. my 3 months of disability may be extended and with no answers i am wondering what is next. i am completely confused and baffled by my body. just plain confused.

i will get in to see the pt, hopefully in the next two weeks, to see what we can do to get my body functioning properly again.

thankfully my hope is not in my abilities or what i can accomplish, but in the unseen. this is not the end all to be all. this is just the continuation of this journey. i have more to gain from this struggle and i don't want to miss the opportunity while i wallow in my pain.

Now faith is the assurance of things hoped for, the conviction of things not seen.
Hebrews 11:1

Saturday, August 27, 2011

do i realize?

only a couple days away from getting the mri-arthrogram, and hopefully some answers.

i'm nervous and antsy about this next step. what do the next couple months have in store? will i be going back in for surgery? will i have an answer?

i am also filling my thoughts with anxiety about how lonely this road is and is getting. it ends up being a lot of days where i am alone, and people are busy. i sometimes wish everyone else' lives would slow down just a tad so they could come over, we could watch a movie, eat dark chocolate, and paint our nails. i wish people could slow down their agendas to my pace. i wish i could interrupt their run for the night, or the every night hangout they have with their boyfriend...i wish i could interrupt what agenda people have and they could just slow down with me...selfish, yes, i know.

i am pretty sure i am pretty boring right now. i am low energy because of pain, i'm poor/on disability so i don't have a lot of expendable income, and i just don't feel fun...

i'm realizing that in all of this i am having to be okay with me. i hang out with me all day and i have to be okay with my thoughts, with my activities (or lack there of), i have to be okay with the fact that God allows us to suffer.

this was a breakthrough for me. i was realizing how NOT okay i was with the events of the last year and 3 months or so. i realized that i was inhibiting the possibility of growth in my doubts. with my bitterness i was stuck.

the reality is though that every moment i doubt i'm being taken care of God reminds me of just HOW taken care of i really am. none of this looks like i want it, or how i thought it would, but i am taken care of.

so...here's to a couple days of calming the angst and allowing for growth in all of this!

Sunday, August 7, 2011

7 month post-op

7 months post-op. wow. time flies, even when you're not having fun.

i am a little over a month into my second round of disability and learning to be still. with strict orders to only be moving and up for about 20 minutes in every hour, for a max of 4 hours in the day, i am truly going a little stir crazy. the reality is though that this time has been my saving grace.

with constant inflammation from april to the beginning of july, i didn't know how i was ever going to heal. it took a solid couple weeks for my hip to finally settle down. i can now say that with limited mobility i am feeling like a new person.

my muscles and tendons are starting to feel the effects of limited mobility, and shock when i try and push myself too hard. my joint is still easily inflamed and i am even sitting now in pain, but so much less so that a month ago. man, o, man how i hate that i am at the point i am in recovery, but blessed that i have the ability to recover. i get an income with disability, i live with my parents rent free, i have friends and a church community that loves me. i am blessed even in the midsts of what could be an even darker journey.

this process is long, and i don't know when my pain will end; but i hope i can hold onto the quiet  moments i have to rest, recover, and soak in moments not many people get. i have the opportunity to revive my weary body, mind and soul. i am blessed to have the time where i can prune a better me and come out of this process someone i could never have become without these forced moments of stillness.

Friday, July 1, 2011

looking up...

i write this blog for others to experience what life is like with femoroacetabular impingement (fai), what having a labral tear is like, what post-op life is like and everything in between. i also write this blog for myself. it is a good way to process through this journey, with my fingers tapping at my computer. i can pound away and the stress of it all rushes out of me.

i can't tell you how stressful this process has been for me.

the last few sleepless nights have led to exhaustion, but thankfully i have dealt with the disability process before and things are always easier the second time around. all phone calls have been made, and packets are on there ways to various departments for various importance...its hard to keep track...

i got a hold of the leave administration at work and was left with a load of relief. before contacting i was expecting to be left with no leave, no insurance, and ultimately no job...no nothing. thank goodness i made the call to cover my basis because when my family medical leave runs out (which i still have 3 weeks of!) i have medical leave! i don't necessarily have my old job back, but the company will do its best to place me when my disability is over. i don't know if my body can handle going back to my old job, but nonetheless i get to keep insurance (praise the Lord), and the benefits of still being with the company. huge stressor gone.

ultimately there are lights in this really dark tunnel. there is hope that things will get better and the reality is that this surgery and its recovery is unpredictable. everyone heals at a different pace and my pace might be a tad slower.

who knows what blessings in a really good disguise will come.

Thursday, June 30, 2011

almost 6 months post-op

i'm only a few days away from being 6 months post-op and i am back on disability.

i am deflated.

this has been a journey that hasn't left me with many ups, but a lot of downs. i know i will get there, i have to.

on tuesday evening i emailed my doctor with some questions about increasing pain and the request for a modified work status report. a work status report is the all poewerfull piece of paper that states exactly what you can and can't do at work and home. at the end of march when i returned to work i was back at full duty according to my work status report.

for the last few weeks, especially, i have been in increasing pain. and since i have not been able to work full duty since march i decided i should get on modifying my work status to what i am actually capable of doing at work. i also wanted to be covered under the american's with disabilities act.

thankfully my doctor responded by tuesday morning with his nurse calling me back that they had a completed work status for me. one things she also mentioned was that they modified it to work only 4 hours a day. this made me nervous. no matter how much pain i am in it is a catch to only be able to work 4 hours a day.

do i get partial disability? will i make enough money if not? i called back after work that afternoon and promptly picked up the work status at one of the closest orthopedics office. i sank as i read the work status report.
stand no more than 10 cumulative minutes every hour, for no more than 4 hours per day
walk no more than 10 cumulative minutes every hour, for no more than 4 hours per day

Limited standing/walking, no squatting, no heavy lifting/push or pull
being that my job requires me to stand and walk for 4-8 hours of the day and i have to squat, lift, push and pull all types of material i was deflated. one of the caviats to a work status report is that if your employer can't accept you go on temporary and full disibility.

i didn't sleep tuesday night. i was worried, scared, anxious.

how is all of this going to work out?

i went in early to work on wednesday and gave the paperwork to my boss. my work status report was denied.

one catch with this process is that i do not have any family, medical leave left. i can't take anymore leave from work, which means i can no longer be employed at my place of work. i will now loose my insurance, be left to find a job at the end of september and have no idea how i am going to pay bills or how any of this is going to work out.

pushing paper for myself is one of the most exhausting tasks. i am emotionally drained and the 5 phone calls i have to make today, in hopes things will clear up, are seeming meaningless.

i need to get on disability, i have to work on getting medi-cal so i have medical care while on disability...i know there is more and i'm burned out already.

this has been over a year of jumping through hoops, advocating for myself, getting paper pushed, care when i want and need it, and missing the mark on so many occasions. i'm ready for this to be over.

i hope that a good update comes soon. maybe after reading this in a few days i'll have realized some of the good in this situation and update on a lighter note. i guess the reality is though that this is reality. in the process of repairing fai and labral tears and surgery in general it isn't easy.

they aren't kidding when they tell you a hip replacement is easier than this!

Wednesday, May 4, 2011

4 month anniversary...

it has officially been 4 months since i had surgery. what a trip all of this has been.

i've been back at work for a month, all of my billing has gone through (eek!), my scars are healing nicely and i'm settling into post-op life.

to be honest this post-op life is difficult. there is a fine balance, i haven't quite figured out, of activity and rest. the pain comes with too little or too much activity and the in between is the golden-zone where you feel almost normal again. i'm excited to find that place and stick there for a while.

work kicked be in the rear for the first two-weeks back. the first two weeks were riddled with intense pain as the request for 4-6 hour shifts was ignored and my weak and inflamed hip couldn't handle the 7 and 8 hours on my feet. with not many options, and a what is seeming to be a non-understanding boss, i'm left working 17 hours a week with probably no promise of more hours. i'm soon to loose health insurance and any financial stability in the wake of post-op recovery.

and oh the medical billing finally processed, gaining another $1,200+ in medical bills. i guess i was naive to actually think that when i asked pre-op if my large payment was all i had to pay that it really was all i had to pay. i'm slowly, or quickly i guess, gaining an air of stress that is only tempered by daily trips to dog beach in the fresh southern california sunshine and the knowledge that my hope doesn't rely in job fulfillment, financial security, or independence but; solely on my hope in Christ alone. my sanity would be gone, sometimes it leaves me for a few but, i've got something bigger to grasp onto than the consumption of all of this.

despite the debbie-downer mentality i hold onto here and there i've tried to get myself out there. i went to the railroad revival tour in san pedro, ca on the 22nd, i get outside for at least a few hours a day and i am on the search for a fresh new start in a new job (Lord willing).


i knew all of this was going to be a process but, i didn't realize to what extent my life wouldn't return to "normal", whatever that really is, post-op. i'm settling into the reality that at a year post-op i'll be feeling good, not 6 months. i'm realizing how much i need more patience and drive. i need to not settle into apathy and acceptance of all of this but, to actually push myself harder than i want to at times. i can be at a better place, happy and full of joy through this process. i don't have to wait for an arrival. i'm blessed to have been given a fix to my ailment while that isn't always the case for others.

here's to the journey!

Friday, January 21, 2011

anxiety...

i've got another week and a half before i go back in to see my surgeon. i'm getting really nervous about the prospect of how he's going to try and manipulate the area (ouch!), if i'm at a good spot in recovery, if i'm going to be given the time i need to recover. this disability has taken over me. i am defined by it. i make plans based upon it. i decide my every second based upon how it will effect my pain level and healing. of all things i would ever become consumed by i didn't imagine this.

i want this time to be consumed with how much people love and support me, reaching goals, dreaming up things i could be doing and all of the things i WILL do once this is all over. or will it all be over. there is still the doubt that i'm left with all of this anticipation. will i be let down with the words, your labrum has torn again, in six months?

i also anticipate leaving my time in sierra madre to continue healing at home and i'm forgotten. i'm getting better, so the appearance of disability has diminished. will people care to stop by? will i not be able to get a ride to freedom? my livelihood still depends on the assistance of others. even the first week and a half was different than i thought. i doubt that people care. did i get enough, you okays, can i bring you dinners, i love yous?

it is true though that i think people don't like to intrude, get in others business, but it is SO important to get in the business of someone recovering.

i do want to thank the few, the faithful family and friends...i might not be able to express enough how much a stop by means, but when you're dependent on your community to come to you, when they actually show up it means the world.

here's hoping my doubts diminish, my community shows up and that regardless, i know i am cherished and beloved by the One that truly matters...

Tuesday, January 18, 2011

motate...two weeks post-op

i really can't believe it's two weeks post-op. i've had my ups and downs, hit some amazing goals, and been set back in many ways.

today was a great day, i trekked down to the local sierra madre coffee shop, beantown, with my brother and played a little cards to break up the monotony of the last few days. i used both crutches as the last few days have proven that i am very much still in recovery mode and very fragile. sunday and monday were a couple painful days. i had been doing pretty well listening to my body, taking it easy and being very cautious. i felt so good after taking such good care of myself that i overdid it on friday and saturday :|

yesterday and the day before i was taking at least two norco a day again and in no shape to get out and about or push myself. it was back to laying low, taking naps and sleeping 10 hours a night (if i remembered to take a pain pill...if not it's more like 2 and 2 again after 3 hours of fighting pain).

i just need to be realistic about the surgery i had done and know that a goal i should have is being completely off crutches by week 3 or 4, NOT 1 1/2!

i'm not a super hero and i need to be understanding to myself, all of this is going to take a lot of time and the reality is that i will be "normal" by six months to a year. there is a reason i have 8+ weeks off of work...i will need it!

i guess i can also talk about my scars and bruising too...eek! :|

the suture sites look great! i'm scabbed over a bit, but they are pretty good. i might start using mederma or such as the sites are getting dry. the bruising is fading, but amazingly still dark! i do bruise easily so i assume the bruising will be around for at least another week. one of the weirdest parts is how sensitive the  bruising and local area still is. i didn't expect my skin to be so sensitive...

all in all i am in a great place at two weeks. i'm up and about, in fairly good spirits (better than i thought), and managing pain. i'm blessed to be spending two weeks with my brother, his wife and my little 7 month old niece. her smile makes me feel much better.

here's to another 2 weeks, another 2 weeks of major recovery and more milestones!

Wednesday, January 12, 2011

1 week post op-day 8

i can't believe a week has passed. i am doing amazing! i did have a fall two days ago that left me crying for over 20 minutes and more than anything scared.

what would i do if i hurt myself and undid everything that was done in surgery. i reeled and thought i broke my hip or that i might be worse than before surgery. this was my first day home alone, there was no-one to help me and soothe my fragile, norco addicted/withdrawing brain. i was shaking, it was bad. i don't think i have ever been that scared, that menaced by an event. needless to say i was mighty sore yesterday, but am feeling like a new woman today!

Besides the "knotting" in my joint and minor pain i am doing really well. my energy is still low and i know when i out do myself, but today my friend "m" took me out of the house! i went to my starbucks and we even grabbed lunch and i sat at the restaurant, pretty much discomfort free, pretty much! I guess i don't have a lot of memory of my hip feeling good, so a day where i can actually sit! at a restaurant is a good day! pre-op i would second guess every trip out with friends that required me to sit. i would have to pop a pill to make it through, and i haven't taken anything today. i really can't believe it! okay, lets be honest, i'm exhausted now and i ache, but nothing like pre-op.

yesterday my friend a took be out of the house for fro yo and that was a stretch so to be out for about two hours today is amazing. now think of everything that was done to my hip, can you believe that i can walk without crutches today?!?

one thing i had mentioned was the norco withdraws. i've been on norco (10/325) for about 6-7 months. I've taken norco about 3+ times every days and am finally at a point where i don't need it but my body does. withdrawing makes me anxious, agitated, uncomfortable, and it brings on a pain that comes from nowhere. I'm down to, thankfully, just one at night. this is my worst pain time anyway, so its good i'm taking it then, but i'm hoping that tomorrow i can take half a dose and not withdraw in any way shape or form.

what an amazing procedure, and what amazing hands my surgeon has to be where i am now!

Friday, December 24, 2010

did i get the memo?

I never realized how much stress would be induced by paperwork...

shoot! Who am I kidding?

Paperwork, that deals with me, and a hefty 'if you don't turn me in you won't have a job when you get better' attached kind of puts the stress over the edge. Mild anxiety attack and I think its gonna be complete by the january 1st deadline...i think *fingers crossed*

Oh the logistics beforehand. Selling stock to pay for surgery, filling out state disability forms, work leave forms, visiting hmo disability offices...oh and Christmas! The world around me is still functioning as usual, even if I'm not.

I pray you all have a Merry Christmas and a blessed New Year!

Here's to many new beginnings and better functioning bodies ;p in 2011!